It's Easter night, and both girls are in bed. We headed up to Okoboji yesterday and spent yesterday and today with the family. Grace always loves seeing her cousins. The Easter Bunny was good to both girls, and we had the usual Easter egg hunt today.
Some good pub for members of Race 4 Grace Austin Scott and Crystal Recker. Austin (Grace's uncle and also the designer of this website) is in charge of Carroll's RAGBRAI website, while his significant other Crystal designed the Carroll RAGBRAI T-shirts. We decided this weekend that the official Race 4 Grace date will be the Atlantic to Carroll leg on July 25. This is a Monday and goes against our tradition of starting on Sunday, but we figured the opportunity to end in Carroll where we have so much family was too good to pass up. More details to come.
Sunday, April 24, 2011
Saturday, April 9, 2011
April 9, 2011
Saturday morning, both the girls are woofing down some oatmeal. Grace is having a friend over to play this afternoon, so her whole focus is on that right now. Claire's whole focus is on making as big of a mess as she can with her oatmeal.
Grace went out to one of the TV station in town on Wednsday to film a promotional interview for Camp High Hopes here in Sioux City. We've written about this before, but Camp High Hopes will be a new camp for kids and people with disabilities. She did very well during the interview, and hopefully we'll be able to get that out to everybody once they finish it.
We went to Iowa City last week Grace's annual appointments with all her specialists. She did very well during a pulmonary function test with her lung doctor, and everything there looks good. We spent some with Dr. Mathews, who is he main doctor there who wev'e known since Grace was diagnosed. Finally we saw an orthapedist and had some x-rays taken of Grace's spine. The curvature in her spine has increased quite a bit, and we're going to try a brace for awhile. The goal is to keep her spine as straight as we can for as long as we can. Kind of scary to think about her eventual spine surgery, but we'll do the best we can to delay that as long as possible.
Grace went out to one of the TV station in town on Wednsday to film a promotional interview for Camp High Hopes here in Sioux City. We've written about this before, but Camp High Hopes will be a new camp for kids and people with disabilities. She did very well during the interview, and hopefully we'll be able to get that out to everybody once they finish it.
We went to Iowa City last week Grace's annual appointments with all her specialists. She did very well during a pulmonary function test with her lung doctor, and everything there looks good. We spent some with Dr. Mathews, who is he main doctor there who wev'e known since Grace was diagnosed. Finally we saw an orthapedist and had some x-rays taken of Grace's spine. The curvature in her spine has increased quite a bit, and we're going to try a brace for awhile. The goal is to keep her spine as straight as we can for as long as we can. Kind of scary to think about her eventual spine surgery, but we'll do the best we can to delay that as long as possible.
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