Wednesday, May 27, 2009
May 27, 2009
Our prayers were answered yesterday. We received news that the test results on our new baby were what we'd hoped--our baby will be SMA free. We are so happy and thankful, and we appreciate everybody's thoughts and prayers over the past month. It was a long four weeks of waiting, but that's over now!
Sunday, May 24, 2009
May 24, 2009
Sunday morning of Memorial Day weekend. Grace turned 4 on Wednesday, and she made the most of it. She was so excited she woke up about a half hour earlier than normal that morning. She had a great day at school, as I think her classmates, teachers, cooks, custodians, and all other school personnel knew it was her birthday (most likely because she'd been telling all of them it was coming for the past month). Then we took her out to eat that night so she could get sung to (again), and right before bedtime we gave her her big present, which is a humongous dollhouse with about 80 pieces of furniture.
The previous weekend we were down in Pella, and we got to spend a little time with our friends the Turnbulls. Their little Stella is doing well, and we're excited that they're planning on heading to the FSMA national conference in Cincinatti (we are too) in June.
Tomorrow we're having a little gathering for Grace's birthday, and we have family from both sides coming, as well as some friends from in town. Should be a fitting finale for Grace's birthday week.
Grace hasn't talked much the past couple weeks about not walking, and we're wondering if maybe she' started to get a grasp of it. There for a while she seemed really frustrated with things and would get upset pretty easily, and we didn't know if it was an age thing or her coming to terms with not walking like other kids. We've tried to continue to be honest and positive with her.
We STILL don't know the results of the SMA test on our new baby, but we expect to get that call early this week. We haven't let up in praying for good news, but either way it'll be nice to know and get this waiting over with. It's been a pretty excruciating four weeks!
The previous weekend we were down in Pella, and we got to spend a little time with our friends the Turnbulls. Their little Stella is doing well, and we're excited that they're planning on heading to the FSMA national conference in Cincinatti (we are too) in June.
Tomorrow we're having a little gathering for Grace's birthday, and we have family from both sides coming, as well as some friends from in town. Should be a fitting finale for Grace's birthday week.
Grace hasn't talked much the past couple weeks about not walking, and we're wondering if maybe she' started to get a grasp of it. There for a while she seemed really frustrated with things and would get upset pretty easily, and we didn't know if it was an age thing or her coming to terms with not walking like other kids. We've tried to continue to be honest and positive with her.
We STILL don't know the results of the SMA test on our new baby, but we expect to get that call early this week. We haven't let up in praying for good news, but either way it'll be nice to know and get this waiting over with. It's been a pretty excruciating four weeks!
Monday, May 11, 2009
May 11, 2009
I sent this to many of you in an email, but in case you didn't get that, we found out today that it will be another two weeks before we know the results of the SMA test on the baby. The clinic that did Michelle's amniocentesis called today and said that the lab doing the testing was doing a different kind of test than we originally thought--and this test takes longer. So whereas we thought we'd know by now, it will be two more weeks before we know.
I did have a revelation this afternoon. Waiting on the test results has in many ways hijacked us, as we pray for good news but worry about bad news. My revelation was not to let this wait control us. The worst that can happen (a positive SMA test) isn't life ending. If we have another child like Grace we'll be thrilled, and we'll be experts on raising a child with severe physical disabilities. So Michelle and I have resolved to try to live without spending every waking minute stressing about getting that call.
I did have a revelation this afternoon. Waiting on the test results has in many ways hijacked us, as we pray for good news but worry about bad news. My revelation was not to let this wait control us. The worst that can happen (a positive SMA test) isn't life ending. If we have another child like Grace we'll be thrilled, and we'll be experts on raising a child with severe physical disabilities. So Michelle and I have resolved to try to live without spending every waking minute stressing about getting that call.
Sunday, May 3, 2009
May 3, 2009
Sunday morning, and Grace just woke up for the day. Her usual weekend morning routine: drink a little milk and watch a few minutes of cartoons before being ready to tackle a day of play. We're in the waiting period right now on the results of Michelle's amniocentesis. It's supposed to be 7-10 days, but it might be longer now because the lab that's doing the testing called and requested a blood sample from me. Apparently the hospital wasn't made aware that a blood sample was required from the father. So, now we're thinking it might be a few more days than we were originally thinking. We're doing o-kay, because we've prepared ourselves for bad news (while still hoping and praying like crazy for good news).
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