Saturday, March 26, 2011

March 26, 2011

Saturday night in Sioux City. Both girls are tucked into their beds. We head to Iowa City this week for Grace's annual appointments there. We'll meet with Dr. Mathews, who is her neurologist and the one who the specialist with SMA. We'll also meet with Dr. Starner, who is her respiratory specialist. Lastly, we'll meet with a new doctor (Dr. Dietz) who will deal with her spine issues--she'll eventually get curvature and scoliosis. Hopefully it'll be a good trip, always good to get down their to see the docs.

We had Grace's annual IEP meeting and her parent-teacher conference this week. Both went really well. The people at Nodland have really taken to Grace, and they do a great job taking care of her. We talked about how things will go in first grade, and they also told us they're going to put a special swing in their playground just for her. Great news there. She's doing very well in school. She's reading at an end of first grade/start of second grade level, and she also really enjoys the math they do. Still, however, she maintains that her favorite class is art.

Finally, much to my chagrin, Grace refuses to watch the NCAA Tournament with me. She told me the other day that she hates basketball unless it's a Briar Cliff game. I guess I can live with that.

Sunday, March 13, 2011

March 13, 2011

We're going to try to get some emails out this week to start promoting Race 4 Grace and our 2011 RAGBRAI ventures. Like always, we hope to get previous riders back and find some new riders. We haven't decided yet on some of the logistics of the week. We have traditionally started RAce 4 Grace on Sunday (the first day of RAGBRAI), and if we do that again we'll be starting in Glenwood. We are considering starting later in the week because we've got connections in some of the other overnight towns. Michelle has most of her family in the Carroll area, which is the overnight town on Monday night. And we know people around Boone and Altoona, which are the overnight towns on Tuesday and Wednesday. We'll see.

Otherwise things are good with Grace. We've been busy this weekend making a leprechaun trap, which is an assignment they have for school this weel. As usual Grace has thrown herself fully into this assignment (hopefully she'll keep that mentality when she's doing Algebra and Chemistry homework down the line).

We had to get a new part for her Dani because she'd gotten too tall for the original part, so we've been without her Dani for a couple weeks. You don't realize how much you rely on mobility until you don't have it! Thankfully we were able to get it put back together yesterday, and she's back in full motion with her Dani. The problem when we don't have her Dani is that we keep her wheelchair at school, which means she often doesn't have any way to get around in the house.