Saturday, February 28, 2009

February 28, 2009

Big news: Grace is going to be a big sister. Michelle is expecting our second child, with the tentative due date in late September. We are really excited, and Grace is over-the-top excited. We were talking the other day about changing our guest bedroom into the baby's room, and Grace said she had decided that the baby would just be moving into her bedroom with her.

There is a 75% chance that this baby will be SMA-free, and a 25% chance that we'll have another child with SMA. We have been well aware of these numbers when trying to decide whether we wanted another child, but in the end we decided it'll be well worth it. We'll rejoice if we we have a healthy baby, and if we have another SMA child, we'll hope and pray that it's another one with Grace's personality. Plus, Grace will be able to teach her little sibling all about driving wheelchairs and other cool things.

Saturday, February 14, 2009

February 14, 2009

Grace had a Valentine's Day party at preschool yesterday, and she was fired up big time for it. She made Valentine's for all her classmates the night before. She's gotten pretty good lately about drawing rather than just scribbling. Currently she can draw flowers, the sun, trees, and people. Her people are pretty hilarious. They're big circles with four lines coming out of them--two arms and two legs. She does make sure to include all the facial features as well.

She had an appointment with her brace maker last week, and he said it was pretty evident that she's grown quite a bit in the last six months. She has to get two new pairs of braces--her full length ones called KAFO's (Knee-Ankle-Foot Orthotics) and her small ones called AFO's (Ankle-Foot Orthotics. She wears her KAFO's to school every day, but on weekends we usually let her wear just her AFO's. Needless to say she's not crazy about wearing her KAFO's, because they're pretty big and unfomfortable. However, they do wonders for her stability in standing, and they keep her knees from buckling in.

Tuesday, February 3, 2009

February 3, 2009

As the home page of the website says, the RAGBRAI route has been announced. It starts in Council Bluffs and runs through southern Iowa. A southern start will present some challenges because we have more connections in central and northern Iowa, but the Race 4 Grace team is determined to get things going again this year. At this point our main goal is to come up with some sort of small bus to have as a support vehicle during the ride. In the past we've used a bunch of mini-vans and cars, but we're thinking it would be ideal to have a single large support vehicle.

On a different note, Grace is the "Star Student of the Week" at her school this week, and she's loving that. She had to bring a big poster that told all about her and the things she likes, and other than that, I'm not sure what they do for her at school. She definitely doesn't mind the attention, however.