Saturday morning, both the girls are woofing down some oatmeal. Grace is having a friend over to play this afternoon, so her whole focus is on that right now. Claire's whole focus is on making as big of a mess as she can with her oatmeal.
Grace went out to one of the TV station in town on Wednsday to film a promotional interview for Camp High Hopes here in Sioux City. We've written about this before, but Camp High Hopes will be a new camp for kids and people with disabilities. She did very well during the interview, and hopefully we'll be able to get that out to everybody once they finish it.
We went to Iowa City last week Grace's annual appointments with all her specialists. She did very well during a pulmonary function test with her lung doctor, and everything there looks good. We spent some with Dr. Mathews, who is he main doctor there who wev'e known since Grace was diagnosed. Finally we saw an orthapedist and had some x-rays taken of Grace's spine. The curvature in her spine has increased quite a bit, and we're going to try a brace for awhile. The goal is to keep her spine as straight as we can for as long as we can. Kind of scary to think about her eventual spine surgery, but we'll do the best we can to delay that as long as possible.
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