The end of a busy Thanksgiving weekend. We spent time with both our extended families, and Grace loves every second of that. She really loves spending time with her cousins, and I hope that always stays that way. They are good to her and look after her as well.
We've had to make a little change in the past couple weeks--taking Grace off valproic acid and carnitine. She developed a very bad rash over her whole body, and after a couple weeks of trying different things, her pediatrician decided that the rash was coming from the medicine (and her Iowa City specialist agreed). We are really disappointed, because we felt that the medicine was having a positive effect--Grace seemed to have more energy, a better appetite, and some increased strength. We may try again when the rash is completely gone, but at this point we're not sure. While we want to try everything we can for her, we don't want her to be absolutely miserable--and the rash was getting to that point.
1 comment:
Hey, Hey this is sammie... i hope that grace gets better.... i love reading the blog because i love knowing what is going on.... all of my friends think that grace and claire are so cute.... i hope grace gets better..... tell her that i still have her pic that she drew me up in my locker... and i have claire and her pic in my locker... the pic that dylan did in art everyone says is sooooo cute... and when i tell them that she is my cuz they always say.."realy" and i am alway trying to get people to do race4grace Love Sammie
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