Today we're starting Grace on valproic acid and carnitine, and we're looking forward to seeing what happens. Best case scenario, Grace feels a little stronger or at least stops regressing. Worse case scenario, she has some side effects and we stop the treatments. We'll monitor Grace closely and see what happens.
We spent a couple days this past weekend in Okoboji and spent much of our time doing what Grace loves most--swimming. We also took her on a boat ride around the lake, and she loved that as well. Pretty much anything on the water--she's gonna love it.
We'll try to get some Race 4 Grace updates and pictures on the website soon.
1 comment:
Hey Nick! I was just reading an article about SMA research at Iowa State, thought you might like to take a look at it if you already haven't!! http://www.news.iastate.edu/news/2009/jul/singh
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