Iowa City Trip

We've been gone quite a bit the last few weeks, trying to enjoy the quickly moving summer. We had a good Fourth of July weekend, and Grace got to spend plenty of time on her Grandpa's boat. She even went tubing, and loved it except for the one time her Grandpa got going a little too fast. This last week we went to Iowa City, and it was a productive trip. Going to the UI Hospitals is always a little bit crazy, because you meed with about 100 people in one trip. This time we spent quite a bit of time with a Pulmonologist, because we're looking into getting a machine called a Cough Assist. It's basically something that helps with breathing, especially if Grace would get really sick. She doesn't need it now, but we want to get it to get her comfortable with it and be ready to use it if necessary. We also met with a nutritionist, who affirmed that we're going things well as far as Grace's nutrition level. She's still very small, but she's been that way since she was born. She's actually getting taller, having moved up to the 10th percentile for height (she's still in the bottom 3 percent for weight, which she's always been). We also spent some time with a physical therapist talking about power wheelchairs.